Alport Syndrome Awareness Month: History, Facts & Insights

This is an in-depth look at all the must-know facts about Alport Syndrome Awareness Month (2024) 🗓️ that no one tells you about. Alport Syndrome Awareness Month is observed on March 1st.

Among the information you’ll find below: the history of Alport Syndrome Awareness Month, activities to do on and how to observe this holiday, as well as interesting facts you should know about Alport Syndrome Awareness Month.

📅 What day is Alport Syndrome Awareness Month 2024?

In 2024, Alport Syndrome Awareness Month is on Wednesday, March 1st. It is the 1st Wednesday in March; in 2024, it is Friday. There are until the next observance. You also can learn all the fun details and facts about March 1, 2023, that you might not be aware of.

In March, we observe Alport Syndrome Awareness Month to bring attention to a rare genetic condition that affects people of all ages. By raising awareness, we can generate funds for research and treatment options for those living with Alport syndrome. This condition affects approximately 1 in every 5,000 to 10,000 individuals worldwide and currently has no known cure. However, medication can be used to manage symptoms and slow down the progression of kidney damage, which is a common complication of the syndrome.

📜 Alport Syndrome Awareness Month History

Currently, there is no specific therapy available for Alport syndrome. However, doctors may prescribe drugs to slow down the progression of kidney disease according to the National Renal Foundation. The A.S.F. is working towards improving early and accurate identification of Alport syndrome, as well as advocating for research and funding. Ongoing research aims to gain a better understanding of Alport syndrome and develop more effective treatments and potential cures.

In 2021, the A.S.F. provided a financial award of $132,000 to support Dr. Jeffrey Miner’s team at the Division of Nephrology in Washington University. This funding will assist their investigations into finding successful treatments for patients with Alport syndrome. In 2019, individuals contributed black and white images of themselves to the A.S.F.’s Facing Alport Syndrome campaign. By sharing these photos with medical experts, they aimed to demonstrate how Alport syndrome affects individuals of different ages, genders, and backgrounds. People with Alport syndrome also helped raise awareness about the condition by sharing the A.S.F.’s posts on social media.

✅ Alport Syndrome Awareness Month Facts

🔖 It is an inherited disease
Alport syndrome is an inherited condition that can be transmitted from parents to their offspring, including their children and grandchildren.

🔖 Different genetic types
There are three types of Alport syndrome: X-linked Alport syndrome, autosomal recessive Alport syndrome, and autosomal dominant Alport syndrome.

🔖 There is no treatment
Medications are typically administered in the early stages of renal disease to address symptoms and slow down the advancement of the condition.

👍 Why Is Alport Syndrome Awareness Month Important

Alport Syndrome Awareness Month allows us to educate the world about Alport Syndrome, raising much-needed awareness for early detection that might save someone’s life. People who have the illness talk about what it’s like, which leads to more discussion about it.

Increased awareness frequently leads to funding, as the SF demonstrated in 2021 when it presented a $132,000 grant to Washington University. The money was given to Alport syndrome research by the charity.

Alport Syndrome Awareness Month campaigns enable patients and specialists to exchange essential information about Alport syndrome. In 2021, for example, the ASA shared findings from its Diagnosis Stories Survey, which included 240 patients and revealed that 51% of adult patients were initially misdiagnosed or incompletely diagnosed.

🙂 How To Observe Alport Syndrome Awareness Month

⚡ Support fundraising campaigns
Showing compassion and support for others is effectively done through the act of giving a gift. Even a small amount of money contributed can have a significant impact and potentially save a person’s life. Donating to the Alport syndrome campaigns ensures that the funds will be used for raising awareness and conducting research to tackle this condition.

⚡ Create awareness
Become a part of the A.S.F. and the global community in bringing attention to Alport syndrome. With the rise of social media, it has become incredibly powerful in spreading messages worldwide. Help raise awareness by sharing valuable information about Alport syndrome on your personal Facebook, Instagram, Twitter, or LinkedIn accounts.

⚡ Attend an Alport syndrome webinar
Webinars offer a great opportunity to gain knowledge on various subjects and find solutions to everyday challenges. You can either participate in the A.S.F.’s yearly webinar or organize your own and invite your loved ones. The aim is to disseminate information about Alport syndrome to a wide audience.

📅 When is Alport Syndrome Awareness Month?

Explore all 🔗 March holidays, including 🔗 Health and other 🔗 Awareness holidays.

We will continue to update this page with new information and interesting facts about Alport Syndrome Awareness Month. So be sure to check back soon.