Bohring-Opitz Syndrome Day: History, Facts & Insights

This is an in-depth look at all the must-know facts about Bohring-Opitz Syndrome Day (2024) 🗓️ that no one tells you about. Bohring-Opitz Syndrome Day is observed on April 6th.

Among the information you’ll find below: the history of Bohring-Opitz Syndrome Day, activities to do on and how to observe this holiday, as well as intriguing facts you might want to know about Bohring-Opitz Syndrome Day.

📅 What day is Bohring-Opitz Syndrome Day 2024?

In 2024, Bohring-Opitz Syndrome Day is on Thursday, April 6th. It is the 1st Thursday in April; in 2024, it is Saturday. There are until the next observance. You also can discover all intriguing details and facts about April 6, 2023, that you might not be aware of.

Each year on April 6th, Bohring-Opitz Syndrome Awareness Day is observed to increase understanding and support for this rare genetic condition. The aim is to connect parents and caregivers with others who can relate to their experiences and provide valuable support. Bohring-Opitz syndrome (B.O.S.) is an extremely rare condition, with less than 300 reported cases worldwide. Taylor Gurganus, the vice chair of the Bohring-Opitz Syndrome Foundation, established this day in 2015, choosing the date to commemorate the first B.O.S. Support Group on Facebook.

📜 Bohring-Opitz Syndrome Day History

In 2015, Carrie Hunsucker and Taylor Gurganus created the Bohring-Opitz Syndrome Foundation as a non-profit organization. Their goal is to improve the lives of individuals affected by this condition by establishing a medical advisory board, raising awareness, providing support for parents and patients, and fostering a sense of community. Through their various assistance programs, they have helped numerous families and collaborated with the medical community to fund research on B.O.S. and its treatments. Additionally, Gurganus initiated the Bohring-Opitz Syndrome Awareness Day to further raise awareness and support the community.

✅ Bohring-Opitz Syndrome Day Facts

🔖 Several variations can cause them
Genetic diseases can arise due to various factors, such as a single gene mutation, multiple gene mutations, a mixture of gene mutations and environmental influences, or damage to the chromosomes.

🔖 They are quite common
Approximately 1 out of every 150 babies is born with a genetic condition that affects their chromosomes.

🔖 The key is in the DNA
Genetic disorders occur when there is a disruption in the usual sequence of DNA, leading to the development of diseases.

👍 Why Is Bohring-Opitz Syndrome Day Important

Bohring-Opitz syndrome is an uncommon and little-known condition. This day brings it to the forefront.

Awareness Day for the Syndrome of Bohring-Opitz has aided in the advancement of research.It has also increased public support for the cause.

This day has brought together families who are also dealing with this condition. It fosters community.

🙂 How To Observe Bohring-Opitz Syndrome Day

⚡ Join one of the B.O.S. events

⚡ Wear denim and gold
The colors associated with B.O.S. awareness are gold and denim. This is because gold represents the attraction that most children with this condition have towards shiny objects. Denim, on the other hand, symbolizes rare diseases. To express your support, you can also wear a B.O.S. ribbon.

⚡ Visit children’s hospitals
Join the Facebook event for Bohring-Opitz Syndrome Awareness Day. You can also take part in social media by sharing posts and inviting your friends to do the same.

📅 When is Bohring-Opitz Syndrome Day?

Explore all 🔗 April holidays, including 🔗 Health and other 🔗 Awareness holidays.

We will continue to update this page with new information and must-know facts about Bohring-Opitz Syndrome Day. So be sure to check back soon.