Cornelia De Lange Syndrome Awareness Day: History, Facts & Insights

This is an in-depth look at all the must-know facts about Cornelia De Lange Syndrome Awareness Day (2024) 🗓️ that no one tells you about. Cornelia De Lange Syndrome Awareness Day is observed on May 13th.

Among the information you’ll find below: the history of Cornelia De Lange Syndrome Awareness Day, activities to do on and how to observe this holiday, as well as fun facts you might want to know about Cornelia De Lange Syndrome Awareness Day.

📅 What day is Cornelia De Lange Syndrome Awareness Day 2024?

In 2024, Cornelia De Lange Syndrome Awareness Day is on Saturday, May 13th. It is the 2nd Saturday in May; in 2024, it is Monday. There are until the next observance. You also can learn all the fun details and facts about May 13, 2023, that you might not be aware of.

Cornelia De Lange Syndrome is an annual event that takes place on the second Saturday of May, and this year it will be celebrated on May 13. The purpose of this day, which was first recognized in 1989, is to educate people about the symptoms, testing, and diagnosis of Cornelia De Lange Syndrome. It also aims to raise awareness about this lesser-known hereditary disease. The goal is to spread information about CdLS in order to decrease the discrimination faced by individuals and families affected by the syndrome. By increasing public awareness, more funding can be directed towards research to prevent and treat this condition.

📜 Cornelia De Lange Syndrome Awareness Day History

Cornelia de Lange Syndrome, a genetic disorder first identified in 1916, is characterized by cognitive and physical traits that resemble autism. Dr. Cornelia de Lange was the first to report the symptoms in 1933. This syndrome is caused by a faulty gene and is passed down through families. It affects about 1-2% of families with a history of the disorder and occurs in approximately 1 in every 10,000 live births in the United States.

While the symptoms of Cornelia de Lange Syndrome can vary, there are some common features to look out for, such as a small head size and lower weight compared to others in the same age group. Other physical abnormalities, including distinctive facial characteristics, short limbs, developmental issues, feeding difficulties, seizures, and heart defects, may also be present. Diagnosis of typical cases of this syndrome is usually straightforward, but identifying milder cases can be challenging due to the wide range of symptoms.

✅ Cornelia De Lange Syndrome Awareness Day Facts

🔖 It is not gender-specific
Men and women are equally affected by the illness.

🔖 Life expectancy is relatively normal
People with Cornelia de Lange syndrome can live into their forties and fifties.

🔖 It is named after a woman
Catharina de Lange, a Dutch doctor, played a significant role in the naming of the syndrome.

👍 Why Is Cornelia De Lange Syndrome Awareness Day Important

The more people who discuss and observe this day, the more others will comprehend the impairment. Dialogue is critical in today’s culture, and this day is dedicated to beginning and growing one.

The funds raised by today’s campaigns are critical.These funds act as catalysts for initiatives to enhance research and improve treatment for people with CDLS.

Because there is still a lack of information and expertise concerning CdLS, afflicted families may feel alone. We feel that this awareness day is an excellent chance for families facing similar issues to connect and exchange experiences, resources, and information.

🙂 How To Observe Cornelia De Lange Syndrome Awareness Day

⚡ Learn more
To gain a deeper understanding of CdLS, you can explore the latest research trends and clinical trial information online. If you work in the healthcare field, it is important to stay informed about new approaches for prevention and treatment.

⚡ Host a Fundraiser
One way to show your support for individuals with CDLS is by arranging a community fundraiser. Local events and grants play a crucial role in generating funds for treatment and research.

⚡ Raise Awareness
You have the opportunity to raise awareness about CdLS among people in your community and culture. This can be done by using social media campaigns or creating public service announcements.

📅 When is Cornelia De Lange Syndrome Awareness Day?

Discover all 🔗 May holidays, including 🔗 Health and other 🔗 Awareness holidays.

We will continue to update this page with new information and fun facts about Cornelia De Lange Syndrome Awareness Day. So be sure to check back soon.