National Tuberous Sclerosis Day: History, Facts & Insights

This is an in-depth look at all the must-know facts about National Tuberous Sclerosis Day (2024) 🗓️ that no one tells you about. National Tuberous Sclerosis Day is celebrated on May 15th.

Among the information you’ll find below: the history of National Tuberous Sclerosis Day, activities to do on and how to observe this holiday, as well as captivating facts you need know about National Tuberous Sclerosis Day.

📅 What day is National Tuberous Sclerosis Day 2024?

In 2024, National Tuberous Sclerosis Day is on Monday, May 15th. It is the 3rd Monday in May; in 2024, it is Wednesday. There are until the next observance. You also can discover all intriguing details and facts about May 15, 2023, that you might not be aware of.

Every year on May 15th, we celebrate National Tuberous Sclerosis Day to increase awareness about Tuberous Sclerosis Complex (T.S.C.). T.S.C., also known as Bourneville-Pringle syndrome, is a rare disease that often leads to societal stigma. However, thanks to the efforts of Tuberous Sclerosis International, the stigma associated with this illness is being actively addressed. This special day aims to fight against the social exclusion faced by individuals with T.S.C. and also raise funds for medical research. It is important to understand that people with T.S.C. are not disabled and have the same rights to education and social participation as everyone else.

📜 National Tuberous Sclerosis Day History

In the early 1900s, advancements in research and technology led to new discoveries about T.S.C. This resulted in a better understanding of the illness, with similarities found in the heart, kidneys, brain, and skin, such as facial angiofibromas and epilepsy.

Thanks to more recent breakthroughs in research, T.S.C. is now more manageable. Scientists are working to uncover the specific gene mutations that cause brain lesions in patients, whether they are genetic, pathophysiological, or neuropathological. The diagnostic criteria for the disease have become more precise, allowing for a better assessment of its severity in each patient. Various therapies are now available, reducing the need for tumor surgery.

✅ National Tuberous Sclerosis Day Facts

🔖 Tuberous sclerosis is not always hereditary
Sometimes, the newborn baby is the initial family member to inherit the faulty gene.

🔖 As common as A.L.S. and cystic fibrosis
Tuberous sclerosis is a condition that occurs in approximately one out of every 6,000 births, and interestingly, about two-thirds of those who are diagnosed with the condition have no previous family history of it.

🔖 T.S.C. is a genetic mutation
T.S.C is caused by a defective gene.

👍 Why Is National Tuberous Sclerosis Day Important

National Tuberous Sclerosis Day organizations raise awareness and funds via fundraising events. The revenues from the events will be used to create programs and resources to assist medical professionals and scientists in their efforts to discover a cure for the disease.

By observing this national holiday, those living with T.S.C. may be seen and heard. Many support organizations exist to help both patients and family members. The continued observance of this holiday allows these groups to grow and reach a larger demographic, making counseling more accessible to a wider range of people.

Having a network of other families affected by T.S.C. is essential for morale and healthcare links. Sharing information and having access to medical specialists is critical to ensuring that patients have a pleasant life.

🙂 How To Observe National Tuberous Sclerosis Day

⚡ Take it to social media

⚡ Support T.S.C. Global Awareness Day
The main objective of this nationwide holiday is to promote understanding and remove the negative perception associated with T.S.C. patients. By showing your support for National Tuberous Sclerosis Day and T.S.C. Global Awareness Day, you can contribute significantly towards making a positive impact.

⚡ Contact your local T.S.C. organization
Social media platforms are effective instruments for increasing public awareness of certain topics. On May 15, print the T.S.C. Global Awareness Day coloring flyers from the T.S.C. worldwide website, snap a photo with your flyer, and share it on social media with the hashtags #TSCGlobalDay and #United4TSC.

📅 When is National Tuberous Sclerosis Day?

View all 🔗 May holidays, including 🔗 Health and other 🔗 Awareness holidays.

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