Rare Disease Day: History, Facts & Insights

This is an in-depth look at all the must-know facts about Rare Disease Day (2024) 🗓️ that no one tells you about. Rare Disease Day is observed on February 28th.

Among the information you’ll find below: the history of Rare Disease Day, activities to do on and how to observe this holiday, as well as cool facts you ought to know about Rare Disease Day.

📅 What day is Rare Disease Day 2024?

In 2024, Rare Disease Day is on Tuesday, February 28th. It is the 4th Tuesday in February; in 2024, it is Wednesday. There are until the next observance. You also can explore all the exciting details and facts about February 28, 2023, that you might not be aware of.

Rare Disease Day falls on the 28th of February each year. In our busy lives, it’s often tempting to neglect our health amidst the chaos of the world. That’s why we set aside this day to remind ourselves of the importance of rare diseases. These conditions may not be well-known, but they affect one in every twenty individuals during their lifetime, and unfortunately, there are no easy cures. The aim of Rare Disease Day is to raise awareness among the general public about these uncommon illnesses, as well as encourage researchers and policymakers to prioritize the needs of those living with rare diseases.

📜 Rare Disease Day History

Rare Disease Day is an annual event where people affected by rare diseases come together to raise awareness and advocate for better policies and support. They organize various activities such as walks, fundraisers, news conferences, and meetings with government representatives. The day also includes a special session in the European Parliament to address policy concerns related to rare illnesses. Prior to the main event, there are policy-related activities in different locations, including meetings between policymakers and people with rare diseases to discuss issues like access to healthcare. Over the years, a wide range of activities have been organized, including marathons, art displays, and seminars, all aimed at getting attention from policymakers and inspiring community action. To show solidarity, iconic landmarks like the Colosseum and the Empire State Building illuminate in pink, blue, and green, symbolizing hope for millions of people worldwide.

✅ Rare Disease Day Facts

🔖 It largely effects children
Uncommon disorders impact approximately 50% of children.

🔖 Global Scale

🔖 1 in 10
In the US, approximately 10% of the population is affected by a rare disease.

👍 Why Is Rare Disease Day Important

Rare Disease Day raises awareness of rare diseases among the general public while motivating researchers and policymakers to address the needs of people living with rare diseases.

The majority of rare diseases have no known cure, and many go undetected; but, by raising awareness, we open hearts and minds to the prospect of discovering a solution.

Significant gains in rare disease policy have been witnessed on a worldwide scale throughout the years, helping to enhance the quality of life for many people around the world.

🙂 How To Observe Rare Disease Day

⚡ Tell Your Story

⚡ Spread the word
Spread awareness about rare diseases by sharing messages on social media for Rare Disease Day, and encourage your friends to do the same.

⚡ Volunteer
Participate in Rare Disease Day by sharing your experience and sending a word of solidarity! You can write about your experience and send images or videos to rarediseaseday.org.

📅 When is Rare Disease Day?

See all 🔗 February holidays, including 🔗 Health and other 🔗 Technology holidays.

We will continue to update this page with new information and fun facts about Rare Disease Day. So be sure to check back soon.