Undiagnosed Children’s Awareness Day: History, Facts & Insights

This is an in-depth look at all the must-know facts about Undiagnosed Children’s Awareness Day (2024) 🗓️ that no one tells you about. Undiagnosed Children’s Awareness Day is observed on April 28th.

Among the information you’ll find below: the history of Undiagnosed Children’s Awareness Day, activities to do on and how to observe this holiday, as well as fun facts you ought to know about Undiagnosed Children’s Awareness Day.

📅 What day is Undiagnosed Children’s Awareness Day 2024?

In 2024, Undiagnosed Children’s Awareness Day is on Friday, April 28th. It is the 4th Friday in April; in 2024, it is Sunday. There are until the next observance. You also can learn all the exciting details and facts about April 28, 2023, that you might not be aware of.

Undetected Children’s Awareness Day, observed on the last Friday of April (April 28 this year), is dedicated to increasing awareness about undiagnosed genetic illnesses affecting children. In the UK, approximately 6,000 newborns are born each year with a nameless condition, a rare genetic illness that often goes undiagnosed. These children go through numerous medical appointments and tests without receiving the proper diagnosis, leaving their parents worried about their healthcare needs being unmet.

📜 Undiagnosed Children’s Awareness Day History

Every year, approximately 6,000 children in the United Kingdom are born with an unknown condition. These children go through multiple medical appointments, and their parents may worry about whether they will receive the necessary treatment. The Undiagnosed Children’s Awareness Day campaign was established by SWAN (Syndromes Without a Name), a humanitarian organization dedicated to creating a support system for families with undiagnosed children. This organization is managed by the nonprofit Genetic Alliance U.K.

Genetic Alliance U.K. was formed in 1989 as the Genetic Interest Group when a group of about twelve charities sought to form an alliance with the help of the British Clinical Genetics Society. In 1993, this group became one of the founding members of the European Alliance of Genetic Support Groups (EAGS). In 2010, the Genetic Interest Group decided to change its name and logo to better reflect its mission. The following year, Liz Swingwood, the grandmother of a child with an unidentified genetic condition, took over SWAN U.K. as a project of Genetic Alliance U.K. to support families with children facing similar challenges.

✅ Undiagnosed Children’s Awareness Day Facts

🔖 Undiagnosed percentage of kids
Approximately 60% of children who have inherited disorders will not receive a proper diagnosis.

🔖 Global developmental delay
Children who have unknown syndromes may be classified as having a global developmental delay.

🔖 Genetic abnormality of one in 20
According to SWAN, approximately 5% of children are born with a genetic defect.

👍 Why Is Undiagnosed Children’s Awareness Day Important

The day brings together families who have children or young people who have undetected genetic disorders. It recognizes their efforts and sacrifices and gives them the feeling that they are not alone.

This day provides a chance to educate healthcare practitioners about the reasons that certain illnesses are difficult to diagnose. It also informs clinicians about the effects of this illness on family life.

This day helps to focus the world’s attention on undiscovered genetic disorders. It brings together the genomic research community, clinical genetic departments, and relatives of people suffering from an undiagnosed or uncommon sickness.

🙂 How To Observe Undiagnosed Children’s Awareness Day

⚡ Volunteer for the cause

⚡ Change your profile photo
Set the swan logo as your profile picture on all your social media platforms. Share this initiative with your friends, family, and colleagues, and motivate them to join in by also using the swan logo as their profile picture.

⚡ Share informative posts online
Visit the SWAN website to see how you can help. You may assist families of sick children by distributing leaflets and registration forms.

📅 When is Undiagnosed Children’s Awareness Day?

Explore all 🔗 April holidays, including 🔗 Health and other 🔗 Awareness holidays.

We will continue to update this page with new information and fun facts about Undiagnosed Children’s Awareness Day. So be sure to check back soon.